Patient Carer and Public Involvement (PCPI)

There is now more than ever a greater commitment to the importance and contribution of patient and public involvement in research. Most funding bodies require and will expect you to demonstrate how you will actively involve patients throughout the cycle of your research

INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.

Patient Carer and Public Involvement(PCPI) in research is considered to be the formation of an active partnership between patients, carers and/or the public and is an integral component of the whole research cycle.  Here are some of the ways patients, carers and members of the public can be involved:

  1. Identifying and prioritising research topics
  2. Developing a grant application alongside professionals
  3. Designing and managing research
  4. Undertaking the research
  5. Analysing research data
  6. Disseminating research findings

 

Useful Information

Here are some working documents you might find useful.

PCPI Strategy

PPI Costing Guidance

 

Further information

Here are some further links you might also find useful.

http://www.invo.org.uk/

https://rds-ne.nihr.ac.uk/

https://www.peopleinresearch.org/

 

For further information with regards to PCPI in research please contact Tracy Scott PCPI Manager, Research and Development, The Newcastle Hospital Foundation Trust. tracy.scott5@nuth.nhs.uk 0191 2820772

 

 

Image: Nurse and elderly patient