Patient Carer and Public Involvement (PCPI)
There is now more than ever a greater commitment to the importance and contribution of patient and public involvement in research. Most funding bodies require and will expect you to demonstrate how you will actively involve patients throughout the cycle of your research
INVOLVE defines public involvement in research as research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.
Patient Carer and Public Involvement(PCPI) in research is considered to be the formation of an active partnership between patients, carers and/or the public and is an integral component of the whole research cycle. Here are some of the ways patients, carers and members of the public can be involved:
- Identifying and prioritising research topics
- Developing a grant application alongside professionals
- Designing and managing research
- Undertaking the research
- Analysing research data
- Disseminating research findings
Here are some working documents you might find useful.
Here are some further links you might also find useful.
For further information with regards to PCPI in research please contact Tracy Scott PCPI Manager, Research and Development, The Newcastle Hospital Foundation Trust. firstname.lastname@example.org 0191 2820772